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    • Home
    • About
    • Solutions & Tools
      • Best in Hydration
      • Entertainment
    • Gift Guides
      • Gift Guides & Lists
      • Top Gift Concepts
    • The Best Advents
      • The Best Advent Calendars
    • Resources

Quirk Curio

Quirk CurioQuirk CurioQuirk Curio
  • Home
  • About
  • Solutions & Tools
    • Best in Hydration
    • Entertainment
  • Gift Guides
    • Gift Guides & Lists
    • Top Gift Concepts
  • The Best Advents
    • The Best Advent Calendars
  • Resources

Resources

Finding accurate, trustworthy information about chronic illness and disability isn’t always easy. Whether you’re navigating a new diagnosis, looking for practical support, learning about your rights, or hoping to connect with others who understand, we’ve gathered resources to help you find your way.


If you’re here because your person is living with a chronic condition or disability, welcome. Following and listening to disabled voices is one of the most important ways to better understand our experiences and become a stronger ally.


A Growing Resource Library


This is a growing collection, and some topics currently have more information than others. That reflects the resources we’ve discovered and the experiences we can speak to firsthand—not the importance of one condition over another.


We hope to continue expanding this library, including more in-depth guides as we’re able.

If you know of a valuable resource we’ve missed, we’d love to hear from you! 


Please reach out through:

The Contact Us Section

Email me at quirk@olfactorypostcards.com

Instagram at @QuirksAndSpoons

A serene landscape featuring a calm lake surrounded by mountains and trees under a clear blue sky.

Websites

General Disabilities & Conditions

General Disabilities & Conditions

General Disabilities & Conditions

National Organization for Rare Disorders (NORD)

Rare Diseases International

International Disability Alliance

American Disability Association

American Association of People with Disabilities

British Government's Disability site


The National Center for Biotechnology Information (NCBI)(NIH)


RARE  Young Adult with Rare Disease's Healthcare Guide


This is just the start.  If your country is not listed, please let us know.

Disability Rights

General Disabilities & Conditions

General Disabilities & Conditions

United Nations

World Health Organization

World Institute on Disability

Disability Rights International

RARE Foundation

Disability Rights -From the US Justice Department 

Condition Specific Websites

Dysautonomia

The Dysautonomia Project

Dysautonomia International

Ehlers Danlos Syndrome

The Ehlers Danlos Society

Ehlers-Danlos Support UK


IBD, Crohn's, & Colitis

Crohn's & Colitis Foundation

CDC's IBD Page

Crohn's & Colitis Canada

National Institute of Diabetes and Digestive and Kidney Diseases

MCAS

American Academy of Allergy, Asthma & Immunology (AAAI)

Mast Cell Action

NIH's Mast Cell Activation Syndrome

The Mast Cell Disease Society

POTS

The National Institute of Neurological Disorders and Stroke

POTS UK

American Heart Association


Ostomies

United Ostomy Associations of America

American Society of Colon & Rectal Surgeons  - To help find a colo/rectal surgeon

National Institute of Diabetes and Digestive and Kidney Diseases


Stoma Products:

https://www.coloplast.us/

https://www.convatec.com

https://www.hollister.com/en/

https://ostoform.com/


Ostomy Retail Suppliers

  • Byram Healthcare: Provides home delivery, insurance coordination, and re-order reminders (1-800-308-9445)
  • The Parthenon Company: A nationwide distributor carrying products from major brands with online catalog ordering.
  • Comfort Medical: Supplies a wide variety of one-piece and two-piece pouching systems directly to homes.
  • Vitality Medical: Offers an online retail store for bags, barriers, and accessories

 

Affiliate Disclosure
Quirk Curio sometimes uses affiliate links. If you purchase something through one of these links, we may earn a commission at no additional cost to you. As an Amazon Associate I earn from qualifying purchases.


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