Finding accurate, trustworthy information about chronic illness and disability isn’t always easy. Whether you’re navigating a new diagnosis, looking for practical support, learning about your rights, or hoping to connect with others who understand, we’ve gathered resources to help you find your way.
If you’re here because your person is living with a chronic condition or disability, welcome. Following and listening to disabled voices is one of the most important ways to better understand our experiences and become a stronger ally.
A Growing Resource Library
This is a growing collection, and some topics currently have more information than others. That reflects the resources we’ve discovered and the experiences we can speak to firsthand—not the importance of one condition over another.
We hope to continue expanding this library, including more in-depth guides as we’re able.
If you know of a valuable resource we’ve missed, we’d love to hear from you!
Please reach out through:
The Contact Us Section
Email me at quirk@olfactorypostcards.com
Instagram at @QuirksAndSpoons


National Organization for Rare Disorders (NORD)
International Disability Alliance
American Disability Association
American Association of People with Disabilities
British Government's Disability site
The National Center for Biotechnology Information (NCBI)(NIH)
RARE Young Adult with Rare Disease's Healthcare Guide
This is just the start. If your country is not listed, please let us know.


United Ostomy Associations of America
American Society of Colon & Rectal Surgeons - To help find a colo/rectal surgeon
National Institute of Diabetes and Digestive and Kidney Diseases
Stoma Products:
Ostomy Retail Suppliers
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